Archive for » 2010 «

Merry Christmas

I hope everyone that reads this had a great Christmas.  Or if you celebrate one of the other holidays occurring right now, I hope that is going great as well.

My Christmas was pretty good.  I got nearly everything I asked for.  I now officially own my own Xbox 360 instead of having a borrowed one.  I am also now a member of the Barnes and Noble club which really excites me because now I can start getting savings on all the books I buy…which is a lot of books.  I’m not sure, out of those two gifts, which one I am more excited about.

There was a bit of a negative today.  And one that I couldn’t have even created as a self-fulfilling prophecy.  Without asking me, my parents and brother left to go see a movie.  I had no idea they were leaving and in fact, went over to the house to spend more time with them and that was when I discovered that they had all left.  I tried to call each of them but no one was answering.  Finally, I left a message on my mom’s phone stating that I didn’t know where they were and I was really worried since no one was answering their phones.  After the movie, my mom called and told me that they had gone to the movies.  I asked her why no one asked me if I wanted to go and she told me they just figured I wouldn’t want to go.  I could barely prevent the tears from flowing until the conversation ended.  I felt terrible.  For some reason, my parents thought it was no big deal to go to the movies as a family and not include me.  I wondered if my illness made them worried about being in public with me…embarrassed of me.  I felt like an outcast. more…

Quiet Isn’t Always The Best Solution

The semester is over.  Thank God.  This winter break comes at a much needed time.  A time in which I can continue to recover from the bouts of psychosis I had in October/November.

I made it through the semester with an A and three B’s.  I haven’t had grades that good for a full length semester since before I was ill.  And even then…that was an achievement.  I usually have at least one class that keeps me at a C or D.  So to get these grades during a semester in which I was hospitalized twice and couldn’t always get to class due to anxiety or delusional thinking…I am absolutely thrilled.

Now I say that winter break is a good thing.  But it can be a trap as well and I have to be aware of that.  Forget about Seasonal Affective Disorder, I can go right back into psychosis or a bout of depression if I don’t make sure I stay active during break.  I can’t just sit around and watch tv all day or play with Sheriff.  I have to make myself participate in structured activities.  Things that are tangible and productive.  That includes this website, the support forms I frequent (and one I moderate), reading books, working on art work, and continuing my soap making hobby.  Luckily, I got an order in a couple days ago of a gift basket and then some personal bars of soap.  I’m also making soap for all my family members and friends who get gifts this year.  more…

Schizophrenia Is…

Schizophrenia
Is a familiar alien world
Where invisible beings whisper secrets and lies
Tiny generals lead wars in the cavities of bones

Schizophrenia
Is a loss of being
Not remembering how to interact
Social pleasures and an affect we lack

Schizophrenia
Is Maddening!
Because there is no reasoning with an insane brain
Because it changes lives so they can never be the same

Schizophrenia
Is in the head
It can’t be found nor destroyed
It is an invisible void not to be tampered with

Schizophrenia
Is thought to be evil
It is the illness of serial killers, murderers
It is the plague of the homeless

Schizophrenia
Is me
Trying to make it in a crazy world
Trying to hide my insanity from you

I Don’t Want To Talk About It

Lots of people want to know what I am going to do once I graduate in May.  I don’t have an answer and I don’t want to have an answer.  May is 6 months away.  May is in an entirely different year (an odd numbered year even!)  Graduating in May means that I’ll have gotten through another entire semester successfully.  It means that I’ll stay sane enough to avoid being hospitalized so many times that I need to drop classes.  That’s just the long term aspects of things to be considered about getting to graduation day.

Let’s try the short term aspects.  Getting to May means I won’t kill myself tonight or tomorrow or any time before May.  It means that I will pass all the classes I took this semester.  It means that I won’t listen to The Pressure and run off to LA to be a homeless person.  (Explanation: The Pressure is a voice in my head that pressures me to do things I don’t want to do.  So far I am successfully ignoring it.)  It means that I will make it through tomorrow and every day afterwords as a mostly functioning individual.  It means that all my worries about dying in horrible ways and similar tragedies will not come true…I won’t be involved in a lethal car accident, I won’t be kidnapped, a plane won’t land on me, I won’t be murdered, etc.

So I don’t have an answer to what I’m going to do once I graduate.  I don’t want to have an answer.  I have too much to worry about before that happens.  Just considering it now scares me and makes me anxious.  That doesn’t mean that I need to spend more time talking about it or thinking about it…I don’t need to be desensitized to the idea of graduating.  It means, very simply, that I know my limits. more…

What To Do About Irrational Fears: The Answer

In my last post I explained the difficulty I was having with my delusions and dealing with them in a rational manner.  Well they continued to worsen to the point that I was suicidal; although, I didn’t really want to harm myself…it was more like my brain was commanding me to end my life.

Friday, after meeting with my therapist then talking to my mom, I checked myself into the psychiatric hospital.  They immediately took me off of the anti-psychotic I had been prescribed the last time I was in the hospital at the beginning of the month.  I know that one of its side effects was suicidal ideation so perhaps they felt the medicine was doing that to me.  One of the good points about this hospital visit is that there were never more than 10 patients on the ward…which meant everything stayed calm and quiet.

Saturday, the on-call doctor for the weekend tried me on a drug called Saphris.  That stuff did not go over well with me.  First, I was told it was sedating so I was given the dosage before bed.  Well aside from waking me up for breakfast and lunch, I slept until 5pm the next day.  Then, there was an issue with the way the medication is taken.  You have to stick it under your tongue and let it dissolve.  After it dissolves, you can’t eat or drink anything for 10 minutes.  That wouldn’t be so bad if the stuff didn’t act like Novocaine and numb my tongue and bottom of my mouth.  Waiting ten minutes to drink some left over soda was terrible!  When I was finally able to drink…it didn’t help with the numbing.  I had to sleep that part off and luckily the next morning I could again feel my tongue. more…

What To Do With Irrational Fears?

Right now there are snipers watching my three windows waiting for me to walk past so that they can shoot me.  There is a man in my stairwell waiting for me to unlock the door and open it so that he can get me.  He probably wants to kidnap me, rape me, torture me, and murder me.  There is some sort of monster in the yard that will attack me when I take Sheriff outside for the last time tonight.  There are people waiting around the yard with the same goals as the man in the stairwell.

This is what my brain tells me every day.

How does my brain react?  Sheer panic dealt with in irrational ways.  A friend of mine made a wooden shield for part of her Halloween costume last year.  She gave it to me several weeks ago to use as decoration in my apartment.  Currently it sometimes functions as an actual shield as I use it to block views of my head when passing in front of my windows.  Sheriff is trained to go through doors after me or if wide enough, with me.  Currently, I encourage him to go out the stairwell door first with the hopes that he will alert to any intruder.  This scares me further though because if there is an intruder, they will kill my dog.  I have to sacrifice this dog who means the world to me in order to keep myself safe.  And every time I send him through that door first…my brain tells me I am sending him to his death. more…

New Psychiatrist–Destabalizing

When talking to a psychiatrist, nearly everything is question/answer format with little room for conversation.  That is how I interpret it at least.  Maybe some people out there are able to strike up an engaging conversation with their psychiatrist but I can’t figure it out.  They ask questions that have very concrete answers.  They don’t seem open ended.

“Which of your symptoms would you most like fixed?”

“The anxiety and the paranoia cause they make each other worse.”

“Okay, well I think we need to work with your anti-psychotic some then.”

That means change the dose.  In my case, make the dose higher.  I’ll be taking 16mg of Fanapt, a super new atypical anti-psychotic, a day.  The maximum dosage is 24mg a day.  It only has to be increased two more times before I will be at the maximum dosage.  Then, if it isn’t working (which it currently isn’t), I have only two or three more options before the old anti-psychotics are tried.  Things like Haldol, Thorazine, Navane, and Prolixin.  I know that I still have Clozapine and Zyprexa to try but both are rather notorious for weight gain, sedation, and causing diabetes.  Further, taking Clozapine and a benzodiazepine can cause respiratory arrest…hey that could be me.  So really, I’m not open to even trying either of those medications.  Which leads me back to the first generation anti-psychotics.  They of course come with their own host of adverse effects such as acute dystonic reaction, stiffness, tremor, akinesia (decreased spontaneity), akathisia (restlessness…which I already have), weight gain, fainting, photosensitivity, Tardive Dyskinesia, and Neuroleptic Malignant Syndrome.  None of those sound very worthwhile and are the reason that I will not hesitate to tell a doctor that I have no faith in anti-psychotics of any generation. more…

A Peek Inside Psychosis

A few days ago I got released from a local psychiatric hospital after a 6 day stay.  I admitted myself because I could feel my brain spiraling down…down to where I do not make rational decisions.  I was also suicidal.

The first thing the doctor did was change my medication from 1mg of Xanax to 1mg of Klonopin.  The day he did that, I became psychotic.  I was absolutely convinced that every person in the hospital wanted to kill me.  Up until that point, I had been trying to interact with the other patients.  I’d been trying to socialize and ignore the delusional thoughts running through my mind.  But that afternoon, I just snapped.  I became filled with panic.  I fled to my room and climbed into bed, hiding under the covers.  I refused to go to Activity Therapy.  I refused to go to the dining hall to eat dinner.  My brain told me that if I got out of that bed, someone would come kill me.  So there I stayed.  My roommate, who has a similar diagnosis, recognized something was wrong after a couple hours and alerted the staff.  They came to check on me which almost sent me into a panic attack because I was terrified that they had come to kill me. more…

Mental Health System is Damaged

The brains of the mentally ill are damaged in some manner.  Neurotransmitters are either overactive or not functioning.  Synapses aren’t working correctly.  Whole sections of the brain aren’t working as they should.  Mirror neurons are missing.  There aren’t enough neurons.  Ventricles are too large.  The cortex isn’t working properly.  On and on, hundreds of theories regarding what is wrong with the brain to result in mental illness.  The problem is, the human brain is so complex, that even the highest trained neurologists can’t comprehend how exactly the brain works…how complex it really is.

The same could be said about the mental health system because it is just as damaged as a mentally ill brain.  Different clinics prefer to work with specific types of clients.  Some clinics don’t want to be responsible for the patients who have severe mental illness or have a history of self-harm or suicide attempts.  Some clinics have policies that border can be viewed as unethical and certainly are capable of stripping away the rights of the mentally ill individual.  Some doctors would prefer to nearly incapacitate their clients with large amounts of medication simply to make them easier to deal with.  Other doctors don’t really want to take clients who might require more than a 15 minute session every  months.  Here, the problem is, the people who need mental health services can’t always figure out how to get those services because the system is damaged…it doesn’t always make sense because it isn’t working properly.  It is similar to a schizophrenic, we aren’t always rational because our brains don’t always tells us things that make sense.

Since my last post, I obtained an appointment with yet another mental health clinic in town.  I went to the intake assessment in which my assigned therapist went over all the paperwork that I had to sign and then asked me a lot of questions to determine what sort of help I need, give the psychiatrist some background information, and develop a treatment plan with me.  To the best of my understanding, getting an intake assessment means that the clinic is willing to provide you with services.   Some of the questions asked involved how often do I hallucinate (daily), how often I have delusional thoughts (daily), the last time I harmed myself (August: non-lethal; June: lethal), the last time I was hospitalized (Sept. 2009), and what medications I am taking.  The therapist appeared to be very concerned about my answers to these questions.  I don’t quite understand some of that.  She wanted to know why I wasn’t on anti-psychotics.  Well, I functioned a lot worse when I was on them and they didn’t eliminate my delusions.  They were also negatively impacting my physical health.  So what was the point?  If I am doing better while not being on those medications currently…why is there a problem with not taking them?  Further, I am not completely against taking these medications.  Currently, I wouldn’t really have a huge problem with it because I strongly feel that my brain needs a rest from such psychotic symptoms…I’m struggling a lot to keep everything together.  I wouldn’t mind taking a break and allowing the medications to help somewhat with this…provided a better medication could be found that did not cause my level of functioning to plummet again.

Anyways, exactly a week after that appointment, I received a phone call from the clinic saying that my appointment for tomorrow with the psychiatrist had been canceled.  It was canceled because I am seeing a therapist through my college and this clinics policies state that it is unethical for a patient to see more than one therapist.  Hold on, when did I lose the right to decide what treatment I believe is in my best interest?  The person who called me tried to explain why this is unethical.  His example: a person has a phobia of spiders.  One therapist works on desensitization and wants the person to hold a tarantula eventually.  The other therapist feels that a phobia of spiders is rational and doesn’t need to be worked on. Okay sir, your example not only assumes that I would not take measures to prevent such confusion, but also assumes that I am dumb.  Why would I ask one therapist to help me with a fear of spiders…then turn right around and ask the other therapist to help me with this problem as well?  Why in the world would I subject myself to such confusion?!  I wouldn’t because I know that by doing that…I would be wasting the benefits of having multiple therapists and I would be confusing myself.  I informed this man that when my treatment plan was developed during the intake assessment, it was specifically decided that we would work on things that I am NOT working on with my other therapist!  In response, he fumbled around and responded with something about how it just goes against the policies.  Bullshit I tell you!  Those are stupid policies and you know that I just proved that point!  This man went on to explain to me that he would help me obtain services with another psychiatrist.  Now, over the summer I called a lot of local clinics multiple times.  Of all the psychiatrists accepted by my insurance, the one at this specific clinic is the only one accepting new clients…the others don’t even know when they will be accepting new clients again!  So I asked this man, what happens if you can’t help me find another psychiatrist?  His response, “I’ll broaden my search to include other states.”  Huh?  You feel it would be better for me to drive hours away to see a psychiatrist when there is one perfectly available in my own town?  How is that for ethics?!

But this isn’t the only stunt this clinic pulled last week.  See, I had already encountered the multiple therapist problem before…and I was under the impression that it had been resolved.  The director of the college counseling services had spoken with the director of this clinic.  An agreement had been made…I see a therapist at the clinic once a month and they will allow me to continue seeing my current therapist and still provide my with psychiatric services.  Okay, agreed.  But last week, the director changed her mind.  So I spoke with her to see if perhaps she had forgotten about this agreement?  She denied it had ever occurred.  Yes, she spoke to the director at the college but he supposedly didn’t tell her I was seeing another therapist.  She couldn’t tell me why the director of a counseling center would contact her if I was not seeing anyone at that counseling center.  So I asked her what I was supposed to do to find another psychiatrist since this clinic was literally my last option.  She told me, “that isn’t my problem.”  She had also tried to explain to me that seeing multiple therapists was not therapeutically beneficial.  I asked her if she thought that not receiving psychiatric care was more therapeutically beneficial.  That made her angry.  She proceeded to yell at me and told me, “I am not going to argue with you anymore.  This isn’t my problem and I am through with it.  Have a good day.”  And then she hung up.  I’m sorry…at what point in the education and training needed to become a director of a mental health clinic were you told that it is okay to yell at the mentally ill?  I am being lectured about ethics and that lecture is concluded by yelling at me and being very rude?  I think you are sending mixed messages Ma’am.  more…

Not Everything Can Be Sugar Coated

I’ve made a good attempt to keep this blog relatively light-hearted.  Maybe that isn’t the right word.  In my goal of providing an example that despite having schizophrenia, I still lead a productive and fairly normal life, I have failed to provide examples of the true reality of having schizophrenia.  This isn’t fair to anyone who reads this blog.  I cannot be ashamed of my own illness and at the same time, try to be a realistic example of it.  Realistically, I would not actually have schizophrenia if it didn’t continue to affect me or cause me to struggle in ways that most neurotypicals cannot comprehend.  So why, in a blog in which I hope to provide honest insight, should I sugar coat the reality of my life?

The past several days have taken a huge toll on me.  I’m fairly certain that lately I have been going in and out of psychosis…something I haven’t had to deal with in over a year.  That is not to say that I don’t experience symptoms such as hallucinations or delusions very often.  In fact, rarely a day goes by in which I don’t have to ignore a few hallucinations or fight with my brain to recognize the irrational aspects of a delusion.  But, I strongly believe that successfully accomplishing these aspects of my daily life are  not signs of active psychosis.  When my daily life becomes a fight–a dirty, tooth and nail brawl with my brain–I don’t classify that as managing my own symptoms.  more…